2024 Bi-Annual SWF International Family Conference | DonationMatch

2024 Bi-Annual SWF International Family Conference

Meeting/Networking for Sturge-Weber Foundation
Jul 11, 2024 1:00 PM to Jul 13, 2024 9:30 PM
Deadline: June 28, 2024

Who's Going
Fundraising Goal $100,000
Expected Attendance 200
Reach 6,000
Ticket Price $250
Metro Area Philadelphia, PA
Exempt Status 501(c)(3) (IRS Form 990 Filed)
Nonprofit Category G - Diseases, Disorders & Medical Disciplines
Attendee Gender Ratio 50% Male, 50% Female
Potential Item Uses Gift Bag Live Auction Online Auction Raffle/Sweepstakes Volunteer Appreciation
How Donors Promoted Event Signage Event Program Event Announcement Newsletter Printed Flyers Website Email Blast Facebook Instagram
Attendee Ages 0-4 Years 5-11 Years 12-17 Years 18-24 Years 25-34 Years 35-44 Years 45-54 Years 55-64 Years 65+ Years
Attendees' Children's Ages 0-4 Years 5-11 Years 12-17 Years 18+ Years
Special Populations Health Conscious Allergen-Free
Description

The Sturge-Weber Foundation International Family Conference is a 3-day event where families and key subject matter experts from around the world come to educate, network, and have fun. In many cases, this is the first time our patients meet others like themselves and hear subject matter experts talk about their rare syndrome. Sturge-Weber Syndrome is a very rare neurological syndrome that affects 1 in 50,000 people. SWS causes seizures, port wine stains on the face and neck, and glaucoma. Our families see many specialists, and this event gives them comfort. Our goal is to bring everything they will need to one place. Please consider us and our event--our Sturge-Weber family would appreciate it.  

Wyndham Philadelphia Historic District
400 Arch St
Philadelphia , PA 19106