I am writing on behalf of the Pitt Hopkins Research Foundation. We support research dedicated to finding a treatment, and an eventual cure of Pitt Hopkins Syndrome (PTHS) and other similar disorders. This research is funded by generous donations from the community. As such, we are currently seeking sponsorship for our 2018 Texas Trekkers Walk/5K for Pitt Hopkins set to take place on Saturday, November 3, 2018 at Katherine Rose Memorial Park in Mansfield, Texas. We are extremely excited to add a 5K this year as well.  This annual event attracts over 150 families and over 200 community members and advocates of research benefiting the Pitt Hopkins Research Foundation.

Our board and officers are parents and professionals who volunteer their time, so that over 93% of funds raised and donated go to finding a cure. Our goal is to find a treatment as quickly as possible that will help give our children higher functioning, fuller lives. Please join us, your donations give us so much more than money - they give us hope.

By becoming a donor to this year’s walk, your company will have the opportunity to increase its visibility and exposure to thousands of community members via an extensive social media strategy and at-event visibility. Your donation will not only help you build and solidify vital relationships with regional community leaders, but also create an opportunity for all to learn about how your products/services can help them in their daily lives. We hope you will invest in the betterment of our children by supporting the 2018 Texas Trekkers Walk/5K for Pitt Hopkins. Just a few years ago, our 13 year old son Ashton Green, was diagnosed with Pitt Hopkins Syndrome, an extremely rare genetic mutation that results in severe mental and physical disabilities and lack of speech, seizures and breathing difficulties.  In fact, there are currently less than 750 cases diagnosed worldwide. A few years ago, talking about reversing symptoms of intellectual disability would have been pure science fiction, but thanks to the amazing advances in science, it is now a real possibility. A parent-led initiative has united families from around the world in an effort to raise awareness and to form the Pitt Hopkins Syndrome Research Foundation.  To date, there has been over $500,000 of research for Pitt Hopkins Syndrome funded. 

Of course, to really make a difference, we need to raise more funds to sponsor the necessary research to fund the kind of large-scale trials that can lead directly to a cure. In order to do this at the walk, we will be having a variety of items and baskets that attendees can purchase tickets for and try to win! We would be so very grateful if your company would be able to make a donation to have as one of the main items to help our raffle be successful.  Our 501c3 number is the following:46-0770142.  Please feel free to contact me if you would like more information on donation opportunities with the Pitt Hopkins Research Foundation. I look forward to hearing from you.