The event will benefit the non-profit organization Angioma Alliance DBA Alliance To Cure Cavernous Malformation, the only patient and research organization supporting those affected by cavernous malformation. A cavernous malformation is a raspberry-shaped abnormal blood vessel in the brain or spinal cord that can hemorrhage and cause strokes, seizures, disability, and even death in both children and adults. People with hereditary forms of the illness can develop many cavernous malformations in a lifetime. Currently, brain surgery is the only treatment. Alliance To Cure Cavernous Malformation is working with researchers to develop medications that will prevent hemorrhage and prevent the development of more lesions. Funds from our event will support the Alliance To Cure Cavernous Malformation DNA and Tissue bank, a patient registry, an international scientific meeting, and the development of clinical centers of excellence. We are driving research toward a cure!

Celebrate Evan's second year of life since his stroke on May 4, 2021, which then resulted in brain surgery on May 5. So much to celebrate, and we hope you'll join us for a fun day of golf and dinner.