Facing the Pain of Hemophilia | DonationMatch

Facing the Pain of Hemophilia

Other Event Type for Hemostasis and Thrombosis Center of Nevada
Jul 15, 2025 from 6:00 PM to 9:00 PM
Deadline: July 11, 2025

Who's Going
Fundraising Goal $0
Expected Attendance 55
Reach 55
Ticket Price $0
Metro Area Las Vegas, NV
Exempt Status 501(c)(3) (IRS Form 990 Filed)
Nonprofit Category G - Diseases, Disorders & Medical Disciplines
Attendee Gender Ratio 50% Male, 50% Female
Potential Item Uses Gift Bag Raffle/Sweepstakes
How Donors Promoted Event Signage Event Announcement Printed Flyers Website Email Blast Facebook Instagram
Attendee Ages 0-4 Years 5-11 Years 12-17 Years 18-24 Years 25-34 Years 35-44 Years 45-54 Years 55-64 Years 65+ Years
Attendees' Children's Ages 0-4 Years 5-11 Years 12-17 Years 18+ Years
Special Populations Moms Active People Health Conscious
Description

Hemostasis and Thrombosis Center of Nevada is the only federaly recognized hemophilia treatment center in the entre state of Nevada. We are a non-profit that treats patients with rare bleeding disorders, including of course hemophilia. Hemophilia is a very rare bleeding disorder that can be life threatening. There are 3 different types: A, B (also known as Christmas Disease), and C. Hemophilia A affects 1 in 5,000 males worldwide. Hemophilia B occurs in 1 in 20,000 males worldwide. Hemophilia C, the rarest type, only affects 1 in 100,000 people worldwide. 

For this educational dinner, we will meet with our spanish speaking patients specifically to educate them on the pain they may face with their rare bleeding disorder. Due to the life long treatment of the disease and it's effect on the body, patients may develop "target" joints, arthritis casued by blood pooling in joints, as well as many other physical causes of pain. There are many social and emotional causes of pain that come with this disease: feelings of social isolation, financial burdens for medicine that literally save their lives, amongs many others. We intend to help these patients undertand that there are resources that not only we can provide them, but many other foundations and charities we work with to help. 

Your donation will help entice the patients to take an evening away to help understand more about their lifelong diagnosis and many resources that are out there to help them live longer, happier lives. 

Bonefish Grill
6527 S Las Vegas Blvd
Las Vegas, NV 89119