On Sunday, October 5th, the Los Angeles Chapter will hold it's 4th annual Walk & Roll to Cure FSHD.  Join us at Clover Park in Santa Monica for a fun-filled morning with your family, friends, and fellow chapter members! This year’s Walk & Roll will include a costume contest for both attendees and furry friends! 

Each year, the Walk & Roll to Cure FSHD brings the community together to change the future for all those living with FSH Muscular Dystrophy (FSHD). The Walk & Roll to Cure FSHD is focused on raising funds to end FSHD. Led by dozens of dedicated volunteers and supported by a small staff, these events take place across the U.S. and Canada. The Walk & Roll to Cure FSHD is the only event in North America singularly focused on funding progress for FSHD. Led entirely by dedicated volunteers, events take place across the U.S. and Canada. Since the campaign began in 2018, the community has contributed more than $3.3 million to fund critical research and programs of patient education and support. With one of the lowest expense ratios in the industry, more than $0.91 of every dollar raised supports patient programs and funds FSHD progress.

We began the campaign in 2018 with just 5 events. This community of fierce FSHDers across North America continue to celebrate successful Walk & Roll events year after year. Since the campaign began, the community has contributed more than $4.5 million to fund critical research and programs of patient education and support.

The FSHD Society is the world’s largest research-focused patient organization for facioscapulohumeral muscular dystrophy (FSHD), one of the most prevalent forms of muscular dystrophy. We have catalyzed major advancements and are accelerating the development of treatments and a cure to end the pain, disability, and suffering endured by one million people worldwide who live with FSHD. The FSHD Society has transformed the landscape for FSHD research, and is committed to making sure that no one faces this disease alone. The FSHD Society is deeply committed to working with ingenuity and integrity to accelerate research leading to treatments and a cure.

As one of the most prevalent forms of Muscular Dystrophy, FSHD affects an estimated 1 million people worldwide, including 200,000 in the United States. It is a devastating, progressive, muscle-wasting disease for which there is currently no treatment and no cure. But there is hope: research on the disease and therapy development are gaining momentum. We believe that with a coordinated effort, we will be able to deliver the first-ever disease-modifying treatment to FSHD families in few years.