Malan Syndrome Foundation Silent Auction | DonationMatch

Malan Syndrome Foundation Silent Auction

Online Auction for Malan Syndrome Foundation
May 08, 2022 to May 14, 2022
Deadline: April 16, 2022

Who's Going
Fundraising Goal $25,000
Expected Attendance 300
Reach 1,000
Ticket Price $200
Metro Area Newark, NJ
Exempt Status 501(c)(3) (IRS Form 990 Filed)
Nonprofit Category G - Diseases, Disorders & Medical Disciplines
Attendee Gender Ratio 50% Male, 50% Female
Potential Item Uses Online Auction
How Donors Promoted Event Program Event Announcement Website Email Blast Facebook Instagram
Attendee Ages 0-4 Years 5-11 Years 12-17 Years 18-24 Years 25-34 Years 35-44 Years 45-54 Years 55-64 Years 65+ Years
Attendees' Children's Ages Unsure
Description

Malan Syndrome Foundation is putting on an online silent auction from May 8th, 2022 through May 14th, 2022. Money raised from the silent auction will be used to fund research to help find a cure or better understand the rare genetic disorder. Malan syndrome is a rare genetic disorder that is the result of a change in the NFIX gene and is characterized by overgrowth, intellectual disability, vision and/or hearing impairment, skeletal anomalies, epilepsy and anxiety. Roughly 200 people worldwide have officially been diagnosed with the rare genetic disorder. The mission of the Malan Syndrome Foundation is to improve the lives of individuals and families affected by Malan syndrome in the global community through support, outreach and research. Provide a broad network of support to families affected by Malan syndrome and help advance access to a diagnosis. Promote knowledge development, awareness and sharing of information. Explore research pathways to treatments and cures, as well as enhance understanding of Malan syndrome and related disorders.

Online Silent Auction
15 Wendy Dr
Old Bridge, NJ 08857