Good morning,

My name is Sarah Bottari and I am writing to you today in regards to The Smiley Seth Foundation. This Foundation was created in memory of my son, Seth Bottari. At the age of 5 months old, Seth was diagnosed with Atypical Teratoid Rhabdoid Tumor (ATRT) which is a rare, aggressive cancerous brain tumor. After nine months of being in and out of the hospital, having multiple surgeries, procedures, chemo treatments and spending as much time with his family as possible, Seth passed away on August 30, 2017, just 5 days shy of turning 14 months old. Seth leaves behind me, his dad Steve, his older sister Sadie, a sister Sofie he never met, loving grandparents, aunts, uncles and cousins. Our hope for this Foundation is to keep Seth’s memory alive by raising funds for ATRT research, financially helping other families make ends meet who are affected by this heart breaking disease, donating funds and items to Boston Children’s Hospital, especially 9 North where Seth spent most of his life, and supporting bereavement services for families who ultimately lost a child.

At our first fundraiser in 2019 we were able to raise $16,837.36.  With that money the foundation donated $5,000 to ATRT specific research, $775 to Boston Children’s Hospital, sponsored 2 families (1 traveling and 1 local) for bereavement retreats, and provided mortgage or rent assistance to 8 families.  In addition to this during our birthday toy drive we were able to deliver over a hundred toys to the 9N floor at Boston Children’s hospital.

Since Covid forced us to cancel our planned 2020 fundraiser, our efforts have been mainly online, getting creative with fun ways to raise money to keep our important mission and assistance to families going.  We were able to raise $52,000 in those three years with online fundraising only.  We are so happy to announce that we are finally getting back together in person.

The Smiley Seth Foundation’s third annual fundraising event will be held on Sunday, April 30, 2023 from 12PM-4PM at the Lenzi’s Function Facility.  This will be a family friendly event.  We are hoping to receive raffle donations to help make this event an even bigger success than our last and we would love the support. If you are able to donate something for our event, please call or email me at the information below.

To learn more about Seth’s journey, please visit my online blog here:

http://oursmileyseth.blogspot.com

Thank you for your time and I look forward to hearing from you.

Sincerely,

Sarah E. Bottari

Sarah Bottari
Seth’s Mother/President of The Smiley Seth Foundation

Cell: 781-248-1038
Email: smileysethfoundation@gmail.com