The ULF Family Conference is an annual event where affected families can access the world’s top leukodystrophy physicians and researchers. The Conference aims to provide the latest scientific information to keep families informed on advances in the field but also guide families on topics that will improve their overall quality of life while living with a leukodystrophy. The Conference is an invaluable experience geared toward the whole family: Affected individuals, parents and caregivers, spouses, siblings, extended family, friends, and anyone else in their support network.

This year, the ULF 2023 Family Conference is June 22-24, 2023.  On June 24, 2023ULF is organizing fundraiser to raise money to sustain ULF mission and keep hope alive for families all over the world. Estimated number of attendees is around 300.