About the Nonprofit
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The Aplastic Anemia & MDS International Foundation, Inc. (AAMDSIF) is the world's leading nonprofit health organization dedicated to supporting patients and families living with aplastic anemia, myelodysplastic syndromes (MDS), paroxysmal nocturnal hemoglobinuria (PNH), and related bone marrow failure diseases.
AAMDSIF is a patient-focused and patient--centered organization, serving patients and families throughout the three phases of bone marrow failure diseases:
* The life-changing phase of diagnosis
* The life-threatening phase of treatment
* The life-long phase of living with a chronic disease
We Provide:
Personalized Support from Patient Educators
Free Educational Materials
Online Learning Center
Peer Support Network
Regional Patient and Family Conferences
Newsletters and Electronic Resources
Clinical Trials Information
What Else Does AAMDSIF Do?
Funds medical research to find better treatments and cures for aplastic anemia, MDS, and PNH.
Advocates for increased federal funding of bone marrow failure disease research.
Promotes public awareness of bone marrow failure diseases.
Educates medical professionals on the most up-to-date information about these diseases, their diagnosis, and treatments.
