About the Nonprofit
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WHO ARE WE?
The Chiari & Syringomyelia Foundation is a non-profit organization founded in 2007, ultimately licensing the name of Bobby Jones in 2019 to become the Bobby Jones Chiari & Syringomyelia Foundation (Bobby Jones CSF). Our goal is to raise awareness and find a cure for Chiari malformation (CM), syringomyelia (SM) and related disorders.
We have funded over $6 million dollars worth of education and research projects/meetings in its initial years and has impacted more than 3.5 million people around the world, who are looking for answers.
Bobby Jones CSF Network of Experts
Our Scientific Education & Advisory Board is made up of many internationally-renowned medical doctors, professors, scientists and experts. The Board of Directors and Board of Trustees include community and business leaders, educators, legal experts, families and patients, who have long been advocates in the CM/SM community. Their skills and drive to develop, fund, and oversee Bobby Jones CSF programs and research will improve the lives of the over three million families affected by Chiari malformation, syringomyelia and related disorders in the United States, alone.
Bobby Jones CSF brochure to download and print here.
Recognitions & Awards
Bobby Jones CSF is currently the only organization funding research, education, awareness and advocacy for Chiari malformation, syringomyelia and related disorders to have both the Better Business Bureau’s Wise Giving Alliance seal and the Guidestar Platinum Seal. We are rated a 2022 Top Nonprofit independently by donors, patients and families, on GreatNonprofits to do so. Each year, you can catch Bobby Jones CSF in USA Today’s Giving Tuesday edition, among other nonprofits deemed as both effective in their missions and responsible with their donors’ dollars.
