About the Nonprofit
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The Chiari & Syringomyelia Foundation is a non-profit organization that was founded in 2007 and in 2019 the family of Bobby Jones and the Chiari & Syringomyelia Foundation partnered to form the Bobby Jones Chiari & Syringomyelia Foundation (Bobby Jones CSF) remaining a non-profit organization with the goal of raising awareness and finding a cure for Chiari malformation (CM), syringomyelia (SM) and related disorders.
Bobby Jones CSF has funded over $6 million dollars’ worth of education and research projects/meetings in its first 13 years and has impacted more than 3.5 million people around the world, who are looking for answers.
Our Scientific Education & Advisory Board is made up of many internationally-renowned medical doctors, professors, scientists and experts. Our Board of Directors and Board of Trustees include community and business leaders, educators, legal experts, families and patients, who have long been advocates in the CM and SM community. Their skills and drive to develop, fund, and oversee Bobby Jones CSF programs and research will improve the lives of the over three million families affected by Chiari malformation, syringomyelia and related disorders in the United States, alone.
Bobby Jones CSF is currently the only organization serving patients with Chiari, syringomyelia and related disorders to have earned all three of the following distinctions: BBB Wise Giving Alliance Seal, GuideStar Platinum Seal and the Health On the Net Code. Each year, you can catch Bobby Jones CSF in the Giving Tuesday USA Today among the other nonprofits deemed as both effective in their missions and responsible with their donors’ dollars. We also recently received a 100 out of 100 Charity Navigator score. Charity Navigator's rating system examines two broad areas of a charity's performance; financial health and accountability & transparency.
