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About the Nonprofit

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The Curing Retinal Blindness Foundation’s mission is to fund CRB1 research and connect families to resources for raising blind and visually impaired children.

We are the only patient organization in the world specific to CRB1 Rare Eye Disease. Our patients are blind or visually impaired due to mutations in the CRB1 gene causing a rare, genetic, degenerative retinal disease (Leber’s Congenital Amaurosis, Retinitis Pigmentosa, or Cone-rod Dystrophy). Some of the children have already lost most of their sight. Many of the patients still have some useable vision, but it will deteriorate if nothing is done to stop the degeneration. Please help us drive the research for treatments and connect our affected families to resources to thrive!