About the Nonprofit
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Since being founded by parents in 1960, Cystic Fibrosis Canada has dramatically changed the cystic fibrosis (CF) story.
We are a national not-for-profit corporation and one of the world’s top three charitable organizations committed to improving and lengthening the lives of people living with cystic fibrosis.
In our 60 year history, we have advanced cystic fibrosis research and care that has more than doubled life expectancy for Canadians living with cystic fibrosis. We’ve contributed to the global body of CF knowledge, funding research achievements such as mapping the gene that causes cystic fibrosis, in 1989. And we’ve advanced access to life-changing CF medicines in Canada through relentless advocacy and government relations work.
Today, Cystic Fibrosis Canada is a leading organization with a central role engaging people living with cystic fibrosis, parents and caregivers, volunteers, researchers and healthcare professionals, government and donors. We work together to change lives through treatments, research, information and support.
Despite our remarkable progress together, we are not yet done. Not when half of the Canadians with cystic fibrosis who died in the past five years were under the age of 37. We are pushing further!
