About the Nonprofit
Visit Our Website Nonprofit Category: G - Diseases, Disorders & Medical Disciplines
Exempt Status: 501(c)(3) (IRS Form 990 Filed)
Testing for Tots is a program of Fabry Support & Information group focused on newborn screening of Fabry Disease. Fabry impacts the brain, heart, and kidneys early in life and most men untreated will have heart attack, stroke or kidney failure between 30-50 years of age. Only six states screen for Fabry and our mission is based on those states showing that over 95% of people living with Fabry are undiagnosed, leading to early death and impacting many family members.