About the Nonprofit
Visit Our Website Nonprofit Category: G - Diseases, Disorders & Medical Disciplines
Exempt Status: 501(c)(3) (IRS Form 990 Filed)
Mission Statement: HLH Heroes Foundation provides support to individuals and families impacted by HLH.
HLH is a rare auto-immune disease that is treated similarly to cancer (through steroids, chemo, and a bone marrow transplant). HLH typically is diagnosed in the first year of a child's life, turning a family's world upside down very quickly. HLH Heroes Foundation aims at helping to support individuals and familes impacted by HLH so that no one fights alone during this journey.