About the Nonprofit
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To provide funding for reasearch and medical expenses for those afflicted with Fibrodysplasia Ossificans Progressiva (FOP). Bingo for a Cure (the annual event held each March since 2011) has raised over a million dollars that has been donated to FOP research. The money raised has significantly helped medical research locate the gene mutation that causes FOP and clinical trials for treatments. Joshua has participated in a few of those clinical trials, but nothing has proven helpful yet. We continue our fundraising efforts in hope that one day a treatment, hopefully a cure, for FOP will be discovered and the known 800 FOPers can live a “normal” life without fear of bone flare ups and bone growth. FOP is very rare and the only known medical condition where one organ system changes into another. An FOP skeleton is on display at The Mutter Museum.
