About the Nonprofit
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Miraculous Miss Maddie! At 15 months of age, I was diagnosed with Angelman syndrome (AS), a rare neuro-genetic disorder. Angelman syndrome is often misdiagnosed as autism, cerebral palsy, or Prader-Willi syndrome because of its similar presentation and symptomatology.
My parents were told of all the things I would never be able to do. Very little was said about my possibilities, but my family decided to focus on hope. Despite all the symptoms I may face, we were determined to create a happy and bright life - filled with hope and possibilities. My family and I are committed to turning the cant's into cans. I am miraculous! I walk. I communicate. I am determined to grow and learn everything.
Maddie’s Mission is here to create awareness and opportunities for others diagnosed with Angelman syndrome and other children with special needs. We should not be limited by a label or defined by what we might or might not be able to achieve.
