About the Nonprofit
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The Moebius Syndrome Foundation supports a rare disease community comprised of individuals and families born with a rare condition called Moebius syndrome. People born with Moebius syndrome are missing their 6, 7, and sometimes 7 cranial nerves which causes them to be born with facial paralysis and other symptoms, including: The inability to smile, frown, blink, difficulty swallowing, impaired speech, vision and sometimes hearing impairments, missing limbs, low muscle tone, and sometimes autism and other neurological conditions.
Our mission is to provide information and support to the parents and families, caretakers, and individuals with Moebius syndrome (children, teens, and adults). We promote awareness, equality, advocate for scientific research, and provide crucial networking and social support.
