About the Nonprofit
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The National MPS Society exists to cure, support and advocate for MPS & ML.
MPS and ML are rare lysosomal storage diseases causing progressive damage within the body's cells. For many of the diseases this results in a loss of ability and an early death. There are roughly 12 diseases that fall under the MPS and ML umbrella. Some of these diseases have a treatment but none of them have a cure. The National MPS Society funds research grants in search of a treatment and/or cure. We support families by offering scholarships and grants for continuing education, medical travel, bereavement, medical equipment and unique experiences. We educate our families and the community about these disorders. We hold a family conference yearly to connect families together and researchers and doctors with families. We advocate for our families and the community. We offer personal support to all families but especially to newly diagnosed families, providing one on one support to help them through the first year of diagnosis.
The National MPS society is a leading organization in the rare disease community. We have been around for 49 years. We are ranked as a four star charity by Charity navigator.
