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About the Nonprofit

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In 1981, determined to improve their children's lives, a group of dedicated and concerned parents came together to form what would become Neurofibromatosis Midwest (NF Midwest). On December 31, 1981, they celebrated the coming New Year by signing the original incorporation letter as the Illinios Neurofibromatosis Foundation.

At the time, little was known about NF. There were no clinics, research, education material, or systems of support. The tenacity and strength of these original NF families laid the groundwork to become a part of a great collaboration that led to monumental progress in care, awarness, research, education, and support.

We help thousands of families and volunteers across our 6 state area. We are the only local/regional organization offering care, support, and hope to NF adults, children, and families.

We depend on funds raised by special events, foundations, and individual donations.