About the Nonprofit
Visit Our Website Nonprofit Category: G - Diseases, Disorders & Medical Disciplines
Exempt Status: 501(c)(3) (IRS Form 990 Filed)
Through Sisters’ Hope Foundation we envision a world where those affected by HDLS/ALSP have support and knowledge, leading to a better quality of life and one day, the first survivor of HDLS/ALSP.
The mission of Sisters’ Hope Foundation is to support and empower families impacted by HDLS/ALSP by:
-educating the public to increase awareness around this rare disease
-advocating for further research and funding to improve treatment options
-connecting patients and families with this diagnosis to build community and support
providing financial assistance and resources to those in need