About the Nonprofit
Visit Our Website Nonprofit Category: G - Diseases, Disorders & Medical Disciplines
Exempt Status: 501(c)(3) (IRS Form 990 Filed)
The DESSH Foundation is a patient advocacy group established to raise awareness of DeSanto-Shinawi Syndrome (DESSH) among the medical profession and the general public, to advance research and education related to DESSH, and to provide a support-community for patients and families challenged by DESSH. We aim to support patients challenged by DeSanto-Shinawi Syndrome by advancing research in pursuit of a cure through awareness and fundraising.
Events
DESSH Family Clinic on September 27, 2023