About the Nonprofit
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The Salla Treatment and Research (STAR) Foundation supports individuals who suffer from Salla and they work to fund research for this rare disase. Salla is a rare degenerative condition where the body is unable to break down Salic acid causing a multitude of debilitating handicaps. Individuals with Salla struggle with gross and fine motor skills, intelletual disabilites, digestive issues, seizures, and a shortened life span. In severe cases individuals with Salla disease pass away in childhood while others don’t survive past early adulthood. There is no cure or treatment for Salla disease. When STAR was founded back in 2018, they only had a handful of doctors and scientists studying Salla; we are thrilled that they now have 45 researchers at 14 different institutions around the world including the NIH, Einstein University, Montefiore Hospital, Children’s Hospital of Orange County! Research has rapidly progressed, and the scientists are already seeing very promising results in just a few short years! Recently, we learned that one of our new hires, Mayra Sabir won the Young Investigators Award - one of the most prestigious awards in the rare disease community! She presented her findings on Salla disease at the World Symposium earlier this year in San Diego, California. With all of these exciting things happening, it is our goal to keep the momentum going by raising the money needed to continue this crucial research.
