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About the Nonprofit

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We are a non-profit organization providing advocacy and funding for X-chromosome deletion research that advances lifelong health, behavior and learning. In 2014 we adopted Moriah Joy. Our story is one of patience, joy and unexpected discovery of a rare X chromosome deletion that has led to the formation of Xtraordinary Joy, Inc. Established in 2016, our vision for Xtraordinary Joy, Inc. is to raise funds that will promote clinical interventions, therapies and care opportunities for children afflicted by never-before-studied X chromosome deletions.