The Mission of Sisters' Hope Foundation is to support and empower families impacted by Adult-Onset Leukoencephalopathy with Axonal Spheroids and Pigmented Glia (ALSP) by educating the public to increase awareness around this rare disease, advocating for further research and funding to improve treament options, and connecting patients and families with this diagnosis to build community and support providing financial assistance and resources to those in need.

Our vision is a world where those affected by ALSP have support and knowledge, leading to a better quality of life and one day, the first survivior of ALSP.

ALSP is a rapidly, progressive neurodegenerative disease, typically occurring in the 4th and 5th decade of life but has been diagnosed as early as 1 year of age. Imagine a movement disorder and a dementia which begins with personality changes and ends with loss of speech, memory, and movements. This devastating disease has already claimed the life of too many individiuals. 

I am asking for your support for a fundraising event being held at the Masonic Lodge in Orwigsburg, PA on Saturday, December 3 and Sunday, December 4, 2022. The event will include basket raffles, gift card raffles and food trucks. We are requesting a monetary contribution, gift card(s) or items(s) to be included in the raffle.