Sisters' Hope Foundation for Hereditary Diffuse Leukoencephalop | DonationMatch


About the Nonprofit

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Nonprofit Category: G - Diseases, Disorders & Medical Disciplines
Exempt Status: 501(c)(3) (IRS Form 990 Filed)

The Mission of Sisters' Hope Foundation is to support and empower families impacted by Adult-Onset Leukoencephalopathy with Axonal Spheroids and Pigmented Glia (ALSP) by educating the public to increase awareness around this disease, advocating for further research and funding to improve treatment options, and connecting patients and families with this diagnosis to build community and support providing financial assistance and resources to those in need.

Our Vision is a world where those affected by ALSP have support and knowledge, leading to a better quality of life and one day, the first survivor of ALSO. 


Events

Hope for the Holidays on December 3, 2022