About the Nonprofit
Visit Our Website Alpha-1 Antitrypsin Deficiency (Alpha-1) is one of the most common serious hereditary disorders in the US. There is no cure for Alpha-1. In its severe form, Alpha-1 can result in liver and/or lung disease at various stages of life.
It is the leading cause of liver transplants in babies and children. When a child is diagnosed with a rare condition, it can be devastating to a family. The Alpha-1 Foundation aims to assist these families with targeted information and resources to ease their anxiety.
In adults, it is commonly misdiagnosed as asthma, emphysema, chronic bronchitis and Chronic Obstructive Pulmonary Disease (COPD). Proper diagnosis leads to proper treatment of these patients which leads to a longer life expectancy for Alpha-1 patients.
The Alpha-1 Foundation is committed to finding a cure for Alpha-1 Antitrypsin Deficiency and to improving the lives of people affected by Alpha-1 worldwide. From creating educational materials for patients, to advocating for better public policy and awareness, to providing a network of support worldwide, to shaping a research agenda that will lead to new medical insights and treatments, the Alpha-1 Foundation plays a critical role in the battle against disease.
